Our son Dominick was born with epidermolysis bullosa, a rare skin disease. He lived a great life but was in pain every day. Although he is no longer with us, we want to help find peace for many families that have to endure this life changing routine of caring for a child with this condition.
By donating to this charity, we can help families live a better life with their children that have EB. EB attacks the skin — not just the skin we see, but also the skin inside of us. The resulting wounds that never heal. Disfigurement, blisters, bleeding, and ever-present pain follow.
EB Research Partnership (EBRP) is the largest global organization dedicated to funding research to treat and cure Epidermolysis Bullosa (EB).